Personal Health Data: It’s Amazing Potential and Privacy Perils

Beth Kanter, Cold Spring Harbor Protocols, Sept 06, 2014
Commentary by Stephen Downes
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It's hard to underestimate the potential to improve both health and learning through the analysis of personal data. I think of my own experience with Runkeeper to track my cycling. But as Beth Kanter writes, "one can’t help to wonder the consequences of giving your data over to a private company without a clearly defined policies that protects us." The same questions apply in education - and in some cases run more deeply, because unlike in the case of personal apps, education providers aren't even telling us when they're aggregating and analyzing data. Good article, with reference to sources like the Robert Wood Johnson Foundation's "path towards responsible health data research" and Lucy Bernholz's The Why of Data Ethics.

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